People living with diseases with high unmet needs are at the center of everything we do, and we welcome the opportunity to hear from the community via reactions, @mentions, and replies.
However, because we operate in a highly regulated industry, there may be conversations that we can't engage in on our social media channels, including discussion(s) about products and treatment options (ours or other companies’).
When Engaging on our Channels, Please Keep the Comments On-Topic:
We strongly encourage all who choose to engage with our content to stay on-topic. Amylyx will not respond to replies or @mentions that:
- Name any product developed by Amylyx or another company
- Offer any kind of medical advice
- Are threatening, abusive, or condone illegal behavior
- Contain sensitive personal information, including employee names and contact details
- Are commercial in nature (e.g., selling products or services, soliciting followers to other social communities)
- Contain confidential or non-public information
- Violate copyright
- Violate platform Terms of Service (X, LinkedIn, Facebook)
Amylyx reserves the right to hide and/or remove comments that are not in keeping with our community guidelines, and in some cases block users that consistently violate them.
Your Information:
All replies and @mentions on Amylyx’ corporate social media channels are available to the public and may be used to improve processes or help you with a request. When facilitating requests, we may ask for additional information from you; however, this information will only be used for the purpose it was initially requested.
Please also note that the social media platforms we are active on also have access to the information you share with us. For more information, read each platform’s privacy policy (X, LinkedIn, Facebook).
Mentions of Treatment:
In the case of an adverse event or product issue shared with Amylyx on social media, we will need to store and use identifying information you provide in accordance with the applicable laws. Amylyx is required to share this information with our Medical Information team and/or regulatory authorities. In such cases, we are also required to store your personal data to comply with legal and regulatory requirements. We may not be able to respond to questions asking for more information about access to our investigational drugs or to other services.
Contact Us
We understand that some topics require direct communication. For questions or concerns, please contact the appropriate department:
| Medical Information: Email: Medinfo@amylyx.com | Clinical Trials: Email: ClinicalTrials@amylyx.com |
If you believe you are experiencing side effects from an Amylyx product, consult your health care provider immediately.
Purpose of our Channels:
Amylyx’ social media channels are channels to share updates about our work, mission, and resources and to engage with the community we serve in a meaningful and respectful way.
Acknowledgment of Platform Policies
Please note that all engagement on our social media channels must comply with the Terms of Service of the platforms we operate on (e.g., Meta, X, LinkedIn). By participating in our community, you agree to abide by these guidelines and the applicable platform rules.
Thank you for being part of the Amylyx community. Together, we can create a supportive and informed community for individuals living with diseases with high unmet needs.