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Our shared ‘why’

Our shared ‘why’

Every day, the communities we collaborate with drive us forward. We strive to be partners of choice to the individuals that we’re humbled to work alongside and in service of. We share your unrelenting commitment and determination to face challenges head-on.

New community guide for post-bariatric hypoglycemia (PBH) education and support

Graphic depicting the educational PBH guide, available for download as a PDF

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New community guide for post-bariatric hypoglycemia (PBH) education and support

Whether you’re living with PBH and trying to manage the impact of low blood sugar or caring for someone living with PBH, staying informed can make a difference. This guide is an educational resource for the community. PBH is complex, and no two people experience it exactly the same way. The information housed here explains PBH but is not a substitute for medical advice. Talk to your doctor about any questions you may have.

If you’re in the United States, click here to receive emails from Amylyx with educational materials and opportunities to engage.

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Listening to and learning from community stories

Shifting the trajectory of diseases with high unmet needs first requires learning what changes will make meaningful differences for those most impacted. Addressing the debilitating symptoms of PBH could mean the difference between performing your job and being forced to leave it. For people living with neurodegenerative diseases, slowing progression and extending overall survival could mean being there for a milestone moment, like a wedding anniversary or the birth of a child, or maintaining independence and enjoying life’s ordinary moments for longer.

Firsthand experiences of community members motivate our work. We hope that you too can draw inspiration from the stories below.

Community stories

Advocacy that’s rooted in connection

Amylyx employees at a Boston ALS walk.

Advocacy that’s rooted in connection

As collaborators rooted in connection, we believe that lasting impact comes from relationships built on listening, empathy, and trust, not just outreach. We engage early, often, and openly, because real partnership means showing up before you’re needed — and staying long after.

We don’t just ask for input. We act on it. What we learn from the patient and advocacy communities shapes the way we think, the programs we build, and the decisions we make across the company. That’s how we move beyond intent to impact.

Our advocacy framework reflects this commitment through five pillars:

  • Foster trust and long-term partnership with the community
  • Support disease awareness and education
  • Reduce time to diagnosis and address health inequities and literacy
  • Provide insight into the unique unmet needs of patients and caregivers
  • Help advance R&D programs and support clinical trial enrollment

This approach ensures that the patient experience isn’t an afterthought but rather it’s embedded in how we operate and evolve.

Our vision is simple: to be seen as a champion for listening to and meeting the needs of the community.

Philosophy on global access

While advancing research and innovation is helping to uncover the complexities of the diseases we are studying and how they are treated, access to these advancements remains a major challenge, and it is essential for all stakeholders to come together and find ways to ensure these advancements are accessible to those who need them most. Read our global access policy at the link below.

FULL POLICY