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Our shared ‘why’

Our shared ‘why’

We are tackling some of medicine’s toughest problems and are up for the challenge, especially when dealing with relentlessly progressive diseases, and in some cases rare or even orphan diseases and conditions that have no existing treatments. To shift the trajectory of these diseases, communities need action; they deserve unrelenting commitment and determination from a team willing to face challenges head-on. People are counting on us.

Amylyx employees at a Boston ALS walk.

Every day, the communities we collaborate with drive us forward. We strive to be partners of choice to the individuals that we’re humbled to work alongside and in service of. We’ve seen how heightened awareness and collaboration in partnership with the community and advocacy partners ignites innovation. With the growing availability of new treatments, research, and technologies, we are dedicated to leading this movement in neurodegenerative and endocrine diseases.

Listening and learning firsthand

Ushering in a new era for treating diseases with high unmet needs first requires learning what changes will make meaningful differences for those most impacted. For people living with neurodegenerative diseases, slowing progression and extending overall survival could mean being there for a milestone moment, like a wedding anniversary or the birth of a child, or maintaining independence and enjoying life’s ordinary moments for longer. For people living with the debilitating symptoms of post-bariatric hypoglycemia (PBH), reducing the burden of this endocrine condition could mean the difference between performing your job and being forced to leave it.

Thumbnail that links to a video on Vimeo of Raquel, a young woman sharing her experience living with Wolfram syndrome.

Raquel shared her story about living with Wolfram syndrome, how it’s impacted her childhood and college experience, and what matters to her.

Representation of Amylyx' ripple effect of collaboration. The center of the circle reads, "Rooted in Connection."

As collaborators rooted in connection, we ask for input from the community early and often and strive to be partners of choice. We push through barriers in the treatment journey in an effort to generate breakthroughs that will make a real difference. For example, disease journeys may begin with the common problem of obtaining a correct diagnosis – for some, this takes years. Our approach to drug development accounts for the fast disease progression following long diagnosis timelines, significant heterogeneity in patient populations, the need to deepen the understanding of pathophysiology, and lack of consensus on measures of clinical benefit in drug development. Taking into consideration the complex ecosystem of addressing unmet medical needs allows us to focus on those areas where we can make the greatest impact.

Philosophy on global access

While advancing research and innovation is helping to uncover the complexities of these diseases and how we treat them, access to these advancements remains a major challenge, and it is essential for all stakeholders to come together and find ways to ensure these advancements are accessible to those who need them most. Read our global access policy at the link below.

FULL POLICY